The appendix cancer registry is open to patients worldwide
Add your diagnosis and molecular details to our patient-led registry. It powers research, builds the evidence for better treatment, and lets us alert you when a trial opens that fits your biology.
Taking part is voluntary. You control your data and can withdraw at any time.
Already in the registry?
Send a new scan, a new pathology report, or new genomics results. You do not need to resend anything you have already given us.
Add or update your data
Physician-reviewed · IRB-reviewed · 501(c)(3) nonprofit · 1,500+ members across 52 countries
Power research, education, and support
Every dollar goes directly to patient education and appendix cancer research. Help us build the tools patients wish they had from day one.
Donate NowTrusted appendix cancer information, built by the people who lived it.
Appendix cancer is rare, and most new research is written for scientists, not patients. We close that gap. We translate research into plain language, connect patients with experienced specialists, and run a patient-led global registry that helps drive new discovery.
APPENDICURE is a registered 501(c)(3) nonprofit organization. EIN: 41-5040966. Donations are tax-deductible to the extent allowed by law.
Find trials that never mention appendix cancer
The trials that could help you most often enroll by your tumor’s mutations, not by the word appendix. Our free finder reads your biology and surfaces the ones a normal search hides.
Find a TrialFree. Private. About two minutes. Your report is read on your own device and never saved.