APPENDICURE · PATIENT-LED COMMUNITY
FREE · PRIVATE FACEBOOK GROUP · WORLDWIDE
A place to talk about appendix cancer and PMP.
Connect with patients and caregivers who understand. Ask questions, share experiences and learn from one another—wherever you are in the journey.
Request to join our private group →
Around 2,000 members across more than 50 countries. Patients and caregivers in the UK are welcome.
You do not have to figure it out alone.
Appendix cancer and pseudomyxoma peritonei (PMP) can come with unfamiliar words, difficult decisions and questions that arise long after an appointment. Our community brings together people with lived experience and the people caring for them.
Ask everyday questions
Talk about preparing for appointments, caring for a loved one and day-to-day life with appendix cancer or PMP.
Share lived experience
Hear how other patients and caregivers have navigated diagnosis, treatment and recovery. Every person’s experience is different.
Find connection
Join conversations with people around the world who understand the uncertainty that comes with a rare diagnosis.
Understanding an appendix cancer diagnosis
Appendix cancer is also called appendiceal cancer. The words on a pathology report describe the type of tumor. Different types can need different care, so ask your medical team to explain your exact diagnosis, grade and stage.
You can read our plain-language introduction to appendix cancer and bring questions to your next appointment. Our group offers a place to talk about the experience of a rare diagnosis with other patients and caregivers.
LAMN, HAMN and PMP: what do the names mean?
- LAMN
- Low-grade appendiceal mucinous neoplasm: a mucus-producing tumor of the appendix with low-grade cell changes.
- HAMN
- High-grade appendiceal mucinous neoplasm: a mucus-producing tumor with high-grade cell changes.
- PMP
- Pseudomyxoma peritonei: a condition in which mucin builds up in the abdomen, often associated with a tumor of the appendix.
These terms are related, but they are not interchangeable. Your pathology and medical team can explain how they apply to you.
Explore our LAMN guide, HAMN guide and PMP guide. Patients and caregivers affected by these diagnoses are welcome in the group.
Terminology reference: National Cancer Institute: Appendiceal Cancer. This overview is educational and does not determine a diagnosis or treatment.
Who is the group for?
The group welcomes people affected by appendix cancer or PMP, including patients, partners, family members and caregivers. You can be newly diagnosed, receiving treatment, recovering, or supporting someone you love. You do not need to be an expert to take part.
How to join
- Open the APPENDICURE group on Facebook.
- Select Join group and complete any membership questions shown.
- Wait for the group administrators to review your request.
Membership is free. A Facebook account is needed.
What does private mean?
The group is private on Facebook: posts and discussions are visible to group members. It is not anonymous or a confidential clinical service. Share only what you are comfortable sharing, and review Facebook’s privacy settings before posting.
Peer support complements care from your medical team. Members’ experiences are not medical advice, and the group is not an emergency service.
Meet the APPENDICURE community.
Around 2,000 members. More than 50 countries. A shared place for questions, experience and support.
Request to join on Facebook →Free to join · Membership requests are reviewed
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