INDUSTRY PARTNERSHIPS · 2027
Partner with Appendicure to hear directly from appendix cancer patients and caregivers around the world.
Partners fund the work. We keep control of the content, the data, and the community.
Talk to us about a partnership Download the 2027 catalogAn appendix cancer industry partnership with Appendicure funds patient advisory work, patient education, and research support for appendiceal cancers. Appendicure is a patient-led 501(c)(3) nonprofit focused only on appendiceal cancers, including LAMN, HAMN, mucinous and non-mucinous adenocarcinoma, goblet cell adenocarcinoma (GCA), signet ring cell carcinoma, and pseudomyxoma peritonei (PMP).
Why companies partner with Appendicure
Appendix cancer is rare, and patients are spread across many countries. Most hospitals see only a few cases a year. That makes it hard for a company to learn what patients go through, test whether trial materials make sense to them, or reach the people who might qualify for a study. We bring these patients and caregivers together in one place. We do the recruiting, the moderating, and the reporting ourselves.
Global community
Patients and caregivers across every appendiceal subtype and stage. About one in three live outside the United States.
Patient registry
The Patient-Led Global Appendix Cancer Registry is IRB-reviewed and enrolling worldwide.
Trial Finder
The Appendicure Trial Finder matches patients to recruiting clinical trials based on their tumor mutations.
Drug Match
Drug Match shows patients which approved drugs connect to the mutations found in their tumor.
Patient education
Expert webinars, our blog, and our social channels.
Clinical advisors
Physicians and a molecular pathologist guide our content.
2027 partnership programs
Every program is a flat fee set in a short written agreement, and programs can be combined into one package. Full program details and timelines are in the 2027 Industry Partnership Catalog. Email us for current pricing.
5 PROGRAMS
Patient Voice
We recruit, screen, moderate, and write the report. Patients are paid for their time.
3 PROGRAMS
Education
We pick the speakers, write the content, and make the final call on every word. Sponsors are recognized by name and logo. They do not write, edit, or approve content. Before release, a sponsor may point out factual errors about its own products, and we decide what changes. Nothing promotes a product.
3 PROGRAMS
Industry Insight and Training
These programs bring the patient experience to the teams that design trials, write materials, and talk to doctors.
2 PROGRAMS
Clinician Reach and Events
Most doctors never see a case of appendix cancer. These programs reach the doctors who diagnose it and give patients a place to gather.
2 PROGRAMS
Trials and Global Access
Appendix cancer patients are often left out of trials. These programs help the right patients hear about a trial wherever they live.
3 PROGRAMS
Awareness and Visibility
These programs help patients get tested, find trials, and get diagnosed sooner. Partners get year-round recognition.
1 PROGRAM
Research Support
Unrestricted gifts support research on appendiceal cancers and the operation of the patient registry.
Founding Partner Circle
PARTNER
The Founding Partner Circle is a year-long membership for companies that want an ongoing relationship with the appendix cancer community. Founding status is open only during 2027, and the deadline to commit is February 1, 2027.
- One Industry Update Webinar slot
- First scheduling choice for patient advisory boards
- An end-of-year briefing with Appendicure leadership on patient needs
- Founding Partner recognition on appendicure.com and in the annual report
How we protect patients
How every program works
- Patients take part by choice
- Sponsored questions are labeled as sponsored
- No names, contact details, or records are ever shared
- Partners never post in or contact the community
- Findings are reported in aggregate
- Results reflect only the members who chose to answer
Never for sale, at any level
- Registry data, registry design, or influence over what the registry collects
- Placement or ranking in Trial Finder or Drug Match results
- Names, contact details, or medical records of any patient
- Posting in, seeing member names in, or contacting members of our patient community
- Writing, editing, or approval of education content, or a say in who speaks
- Endorsement of any product, drug, test, or company
Custom partnerships
We also build partnerships around shared goals. Any program in the catalog can be part of a custom package.
Earlier diagnosis
Help patients and doctors recognize appendix cancer sooner.
Subtype trial awareness
Reach patients with a specific subtype or mutation.
Support in a new country
Build patient support where little exists today.
How to start an appendix cancer industry partnership
Talk
Email us to talk through your goals, timing, and pricing.
Agree
We send a short written agreement with the program, fee, deliverables, and dates.
Launch
The partner signs and pays, and the work starts on the agreed schedule.
Frequently asked questions
Can industry partners get Appendicure registry data?
No. Registry data, registry design, and influence over what the registry collects are never part of any partnership, at any level.
Do sponsors control or approve education content?
No. Appendicure picks the speakers, writes the content, and makes the final call. Sponsors do not write, edit, or approve anything. Before release, a sponsor may point out a factual error about its own products or a statement it believes is legally inaccurate. We correct confirmed factual errors. Every other comment is advisory, and we decide.
Does Appendicure charge per patient enrolled in a trial?
No. The Trial Awareness Package is a flat fee. We never charge per patient enrolled, and sponsored trials get no special placement in the Trial Finder.
Can partners contact members of the Appendicure community?
No. Partners never post in, see member names in, or contact members of the community. All findings are reported in aggregate.
How do I start an appendix cancer industry partnership with Appendicure?
Email Amanda Moore, Founder and Executive Director, at amanda.moore@appendicure.com to talk through goals and timing.
Partner with Appendicure
Amanda Moore, Founder and Executive Director
Email Amanda Download the 2027 catalogResearchers and clinicians interested in the registry can visit For Researchers & Clinicians. Patients and caregivers can join the registry here: United States (US residents only), International (non-US only), or update or correct an existing record.
Appendicure is a 501(c)(3) nonprofit organization incorporated in North Carolina, EIN 41-5040966. Partnership payments support Appendicure’s charitable mission. Partners do not receive data, editorial control, or endorsement.